Our providers at our Cystic Fibrosis Clinic believe in a team approach for care. Our team of experts are available to help children with cystic fibrosis. We’re passionate about providing the best care and working with your child and you beyond treatment.
Our Cystic Fibrosis Clinic provides complete care for children with cystic fibrosis using a coordinated care approach. It is a certified center through the Cystic Fibrosis Foundation.
Cystic fibrosis is a serious, chronic, inherited disorder ranging from mild to severe. It is caused by a defect that leads to an imbalance in the flow of water and salt into and out of cells. Doctors usually diagnose this disease during the first two months of a child’s life.
Our Cystic Fibrosis Clinic also provides a transition clinic that helps provide lifelong care for pediatric and adult patients.
Your care team:
Your team will work with you and your child to develop a care plan that is right for your child based on:
- Your child’s age, overall and medical history.
- Extent of the disease (body systems affected).
- Your child’s tolerance for specific medications, or therapies.
- Your opinion or preference.
Many children today are diagnosed with cystic fibrosis through a newborn screening, but a positive result does not always mean the child has the disease. We will complete a medical history, physical exam and diagnostic procedures to ensure the diagnosis is accurate.
During your visit to the Cystic Fibrosis Clinic, you will interact with a pulmonologist, social worker, dietician, respiratory therapist, genetic counselor and psychologist.
Alec Scharenbroch’s story is just one example
The parents of 7-year-old Alec Scharenbroch know what it’s like to care for a child with Cystic Fibrosis (CF), a genetic lung disease found in one in 3,000 babies that causes persistent lung infections and limits the ability to breathe over time.
Like many parents of children with CF, the news is life changing as they learn more about the challenges and life-long treatments. But it doesn’t have to stop children with CF from living a normal life.
In this video, Alec’s parents tell the story of their journey of caring for a child with CF and their hope that research can find more advanced treatments and ultimately a cure for the disease.
How we’re improving research for cystic fibrosis
Our cystic fibrosis care team takes part in research to provide better diagnoses and treatments for patients living with cystic fibrosis.
For information on additional research and clinical trials, discuss opportunities with your team. You also may view available clinical trials by visiting the Cystic Fibrosis Foundation.
To schedule an appointment, or for more information, call 715-898-6251.
